Interesting study on MS
http://ccsvi-ms.ning.com/profiles/blogs/ms-may-not-be-autoimmune-disease
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Gerry Peters
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Gerry Peters
CCSVI Bill will take place in House of Commons
The debate on C-280, Ms. Duncan’s CCSVI Bill will take place on Wednesday, November 30th at approximately 5:30pm. The debate would last one hour (a second hour of debate would likely happen sometime in February or March). The debate will be in the House of Commons which is located in centre Block (Building with Peace Tower). To gain entrance to the public galleries, you will need to come to Centre Block, go through the security at the welcome centre (Located under the Peace Tower) and then they should be able to direct you to the public galleries.
If you have any further questions or concerns, do not hesitate to contact us.
Ryan Murphy
Legislative Assistant
Office of Kirsty Duncan, MP, Etobicoke North
613 Confederation Building
(p) 613-995-4702
(f) 613-995-8359-
Loreena Weideman Buhl
Hello,
My name is Loreena Weideman Buhl and I am currently doing online research for a Canadian TV documentary “The Italian Cure” about CCSVI and I came across your wonderful blog. I absolutely love the title of your blog
Would you be willing to let Zoot Pictures/Emma Pictures use your blog and videos?
This is the blurb from “The Italian Cure”: The Italian Cure is a one hour documentary that delves into the science, controversy and drama around Liberation therapy, produced by Zoot Pictures Inc. in association with the Canadian Broadcasting Corporation to be broadcast on The Nature of Things in 2012.
Please take the time to verify the truth of this email at the following website, http://www.zootpictures.com/?s=inproduction.
I can be reached through my YouTube page or my personal email address – loreenawb@gmail.com.
Thank you for taking the time to read this message and for your help.
Loreena
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Gerry Peters
The clinic in Mexico where I have my treatment for CCSVI has just started a Raffle to raise money for patients like me. The raffle is a Mexican Vacation (http://www.ccsvifunding.org/go/) and the purchase of the tickets goes toward the cost of my treatment. Hope you check it out.
If you like the idea and would like to help, you can go to my profile at http://www.ccsvifunding.org/go/index.php/community?view=member&id=7 and purchase your own raffle ticket. Much appreciated
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Gerry Peters
Just returned from Mexico – 2nd Procdedure
You should know that I returned to Los Cabos on the 24th of October, primarily for vacation but also to visit the clinic where I had my treatment done. I wanted a check-up and possible procedure if thought necessary. It had been 14 months since my initial procedure and still felt great but my family had noticed some things declining. My energy was slipping as was my cognitive functions.
At the clinic they discovered that blood flow had ceased on my left side. They had originally opened it (last year) to 50% but had conceded that I would have future problems with it. During the venoplasty they found that my left jugular is now permanently collapsed. they had tried several different methods to open it but all attempts failed. they did find a small problem in my right jugular and azygos vein and both were treated successfully. Followup ultrasounds showed that I had optimum flow in my right side.
I have a medical report and DVD of the procedure showing that my left jugular has atrophied but noticed what he called, Accessory Circulatory Pathways (veins that increasing in size to accommodate flow). They were helping flow but would never equal the flow that a jugular allows. My surgeon in Mexico hoped that with my right side flowing well that it would compensate for the left. I suppose the only solution there would be to have a bypass.
The situation that I’m up against now is whether Canada will provide me this medical procedure. We both know that the answer is an emphatic “no”. However, I will be addressing this issue with my Doctor and let him tell me so himself.
It’s become interesting to me to recently find that patients in kidney dialysis have a secondary issue of thrombosis in veins and they have the venoplasty performed regularly (http://www.radiologyinfo.org/en/info.cfm?pg=dialysisfistulagraft). hmmm. Not so invasive and controversial for these patients. It bothers me when I know I’ve been lied to.
Have to say that the Merimed Hospital in Los Cabos has treated me with exceptional care and empathy. Can’t say enough about them.
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Gerry Peters
Just heard from the Merimed Hospital in Los Cabos. That’s the clinic where I had my treatment done. They have set up a fund raising program to help MS patients with costs of the treatment. It’s a great deal for yourself and MS patients. Hope you check it out. http://www.ccsvifunding.org/go/index.php
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Gerry Peters
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Gerry Peters
CCSVI Study Summary
There’s an ongoing debate in Canada whether or not there’s any validity associated with the CCSVI treatment. Most of what I read in Newspapers or watch on TV just gets me upset. They’re debating over what all the stuff that doesn’t really matter – as it seems to me. Very little attention is given to the MS sufferer and how to minimize the horrible symptoms. For me, “once I was blind and now I see.” Debate over. On May 8th it will be 9 months. I’m still feeling great!
I recently received the CCSVI Study from the clinic where I had my treatment. They did a study of 350 patients, of which I was #70. Below you can read for yourselves what’s happening in reality world.
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Dear Friends,
At long last, the analysis report of the first 350 patients treated for CCSVI by The Clinics of the Heart and our great team of specialists is now available for your review. Please feel free to share this with anyone you think would benefit from it. We are extremely pleased with the results and encouraged to continue our quest to conquer the MS beast. As our technique and tools improve, so do our results.
I wish to thank all of our patients for the trust placed in us, and for your continuous support, recommendations and testimonials. As we realize that word of mouth is the best and purest form of advertising, I hope that these results will help us all better understand CCSVI and the vascular treatment.
Your continued support will help us help others.
Sincerely,
Dr. Rafa Moguel, MD
Los Cabos, MexicoOpen study of venous angioplasty for patients with multiple sclerosis
We started inviting patients with diagnosed multiple sclerosis (ME) with actual treatment on June 2010, after it was accepted by the Ethics Committee.
Methods
Every patient was informed about the procedure and read and signed the inform consent form.
Every patient received the following tests before admittance in the hospital:
- Basic pre-procedure laboratory work
- Brain magnetic resonance image
- Neurological evaluation using the following tests:
- Expanded Disability Status Scale (EDSS) which summarizes the level of disability of every person with MS, from 0 through 10. The higher this scale, the more severe the disability
- Multiple Sclerosis Functional Composite (MSFC) which included three tests as follows:
- Timed 25-ft. walk (T25FW)
- Timed test in which patients removed nine magnetic pieces from a metallic board (9HPT)
- Math test (PASAT)
- Bilateral jugular ultrasound Doppler
- Auditive test (from September 2010)
Every patient was admitted in the hospital for catheterization and angiography of both jugular and azygous veins, under mild sedation, subcutaneous enoxaparine 1mg/kg and local anesthesia.
The first 100 patients received post-treatment with subcutaneous enoxaparine 1mg/kg, and the last patients received pre-treatment with fast- and slow-release betamethasone as an anti-inflammatory and post-treatment with either Rivaroxaban or Dabigatran for 10 days to three months, depending on the patient’s estimated risk for thrombosis.
During the venography, it was decided to treat every vein, based on any evidence of chronic insufficiency such as narrowings, impaired flow or collateral circulation.
Every obstruction was initially treated mainly directed to the valves of the veins with balloon angioplasty using compliant balloons. The last patients were treated mainly with non-compliant, high-pressure balloons to increase the likelihood of valve opening and reduce the damage to the walls.
Every patient was intended to hospital discharge after 2-4 hours from the end of the treatment unless contraindicated.
The neurological and auditive tests were repeated 24-48 hours post treatment, and an e-mail follow up was done for symptomatic status and clinical recurrence estimation.
Results
The following statistics are from the first 350 patients of our CCSVI clinical trial.
Pre treatment Post treatment Age 51±11 years Gender male/women 31.6/68.4 % Time from MS diagnosis 17 years Relapsing remitting patients 29.9% Primary progressive patients 24.1% Secondary progressive patients 46.0% Affected left brain hemisphere 32.2% Affected right brain hemisphere 37.7% Both hemisphere affected 30.1% Azygous vein treated 20.4% Left jugular vein treated 93.5% Right jugular vein treated 96.4% EDSS scale 5.46 5.06 (p<0.001) MSFC scale 0.07 0.15 (p<0.01) Objective neurological improvement 91.2% One month clinical restenosis 15.6% Three months clinical restenosis 24.5% Instability 60% 2% Hypoacusis 31.8% 16.1% Tinnitus (ringing) 35% 5.5% An ophthalmologic examination was performed only on six patients that showed clear abnormalities that improved after treatment. This part of the trial will be studied on more patients later because the changes also reflect neurological improvement. Fourteen self-expanding stents were implanted mainly to improve the dilations of some treated veins.
Most of the patients were discharged from the hospital the same day with minimal complications.
The severe complications were 1.4% on these patients and were:
- One azygous vein thrombosed in the follow up
- Two patients with left jugular thrombosis at home
- One patient with left jugular thrombosis at third day, successfully treated with direct intervention of the thrombosed vein with balloon angioplasty
- One patient with a femoral artery aneurysm
- Two patients with balloon rupture that required small surgery
Conclusions
The actual results shows a clear benefit derived from the balloon angioplasty treatment on these “real world” patients with multiple sclerosis, as it was shown previously by Dr. Zamboni et al, but we are describing the acute changes present in less than 48 hours after treatment.
There is a discussion about the validity of the hypothesis that multiple sclerosis is caused by the chronic cerebral spinal venous insufficiency. These results are very consistent with the results of Dr. Zamboni’s findings, as they are supported by the statistically significant objective improvement of more than 90%.
This 350-patient study shows that the azygous and jugular vein angioplasty for multiple sclerosis is feasible and safe with very small complication rate plus a very high clinical efficacy of more than 90%.
In the opinion of the investigators that participated in this trial, there is clear benefit weighing efficacy and security enough to perform this procedure as a regular treatment for the multiple sclerosis patients.
Dear Friends,
At long last, the analysis report of the first 350 patients treated for CCSVI by The Clinics of the Heart and our great team of specialists is now available for your review. Please feel free to share this with anyone you think would benefit from it. We are extremely pleased with the results and encouraged to continue our quest to conquer the MS beast. As our technique and tools improve, so do our results.
I wish to thank all of our patients for the trust placed in us, and for your continuous support, recommendations and testimonials. As we realize that word of mouth is the best and purest form of advertising, I hope that these results will help us all better understand CCSVI and the vascular treatment.
Your continued support will help us help others.
Sincerely,
Dr. Rafa Moguel, MD
Los Cabos, MexicoOpen study of venous angioplasty for patients with multiple sclerosis
We started inviting patients with diagnosed multiple sclerosis (ME) with actual treatment on June 2010, after it was accepted by the Ethics Committee.
Methods
Every patient was informed about the procedure and read and signed the inform consent form.
Every patient received the following tests before admittance in the hospital:
- Basic pre-procedure laboratory work
- Brain magnetic resonance image
- Neurological evaluation using the following tests:
- Expanded Disability Status Scale (EDSS) which summarizes the level of disability of every person with MS, from 0 through 10. The higher this scale, the more severe the disability
- Multiple Sclerosis Functional Composite (MSFC) which included three tests as follows:
- Timed 25-ft. walk (T25FW)
- Timed test in which patients removed nine magnetic pieces from a metallic board (9HPT)
- Math test (PASAT)
- Bilateral jugular ultrasound Doppler
- Auditive test (from September 2010)
Every patient was admitted in the hospital for catheterization and angiography of both jugular and azygous veins, under mild sedation, subcutaneous enoxaparine 1mg/kg and local anesthesia.
The first 100 patients received post-treatment with subcutaneous enoxaparine 1mg/kg, and the last patients received pre-treatment with fast- and slow-release betamethasone as an anti-inflammatory and post-treatment with either Rivaroxaban or Dabigatran for 10 days to three months, depending on the patient’s estimated risk for thrombosis.
During the venography, it was decided to treat every vein, based on any evidence of chronic insufficiency such as narrowings, impaired flow or collateral circulation.
Every obstruction was initially treated mainly directed to the valves of the veins with balloon angioplasty using compliant balloons. The last patients were treated mainly with non-compliant, high-pressure balloons to increase the likelihood of valve opening and reduce the damage to the walls.
Every patient was intended to hospital discharge after 2-4 hours from the end of the treatment unless contraindicated.
The neurological and auditive tests were repeated 24-48 hours post treatment, and an e-mail follow up was done for symptomatic status and clinical recurrence estimation.
Results
The following statistics are from the first 350 patients of our CCSVI clinical trial.
Pre treatment Post treatment Age 51±11 years Gender male/women 31.6/68.4 % Time from MS diagnosis 17 years Relapsing remitting patients 29.9% Primary progressive patients 24.1% Secondary progressive patients 46.0% Affected left brain hemisphere 32.2% Affected right brain hemisphere 37.7% Both hemisphere affected 30.1% Azygous vein treated 20.4% Left jugular vein treated 93.5% Right jugular vein treated 96.4% EDSS scale 5.46 5.06 (p<0.001) MSFC scale 0.07 0.15 (p<0.01) Objective neurological improvement 91.2% One month clinical restenosis 15.6% Three months clinical restenosis 24.5% Instability 60% 2% Hypoacusis 31.8% 16.1% Tinnitus (ringing) 35% 5.5% An ophthalmologic examination was performed only on six patients that showed clear abnormalities that improved after treatment. This part of the trial will be studied on more patients later because the changes also reflect neurological improvement. Fourteen self-expanding stents were implanted mainly to improve the dilations of some treated veins.
Most of the patients were discharged from the hospital the same day with minimal complications.
The severe complications were 1.4% on these patients and were:
- One azygous vein thrombosed in the follow up
- Two patients with left jugular thrombosis at home
- One patient with left jugular thrombosis at third day, successfully treated with direct intervention of the thrombosed vein with balloon angioplasty
- One patient with a femoral artery aneurysm
- Two patients with balloon rupture that required small surgery
Conclusions
The actual results shows a clear benefit derived from the balloon angioplasty treatment on these “real world” patients with multiple sclerosis, as it was shown previously by Dr. Zamboni et al, but we are describing the acute changes present in less than 48 hours after treatment.
There is a discussion about the validity of the hypothesis that multiple sclerosis is caused by the chronic cerebral spinal venous insufficiency. These results are very consistent with the results of Dr. Zamboni’s findings, as they are supported by the statistically significant objective improvement of more than 90%.
This 350-patient study shows that the azygous and jugular vein angioplasty for multiple sclerosis is feasible and safe with very small complication rate plus a very high clinical efficacy of more than 90%.
In the opinion of the investigators that participated in this trial, there is clear benefit weighing efficacy and security enough to perform this procedure as a regular treatment for the multiple sclerosis patients.
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Gerry Peters
On February 8th it will be 6 months since my CCSVI treatment in Los Cabos Mexico. In short I still feel great. Compared to how I was before I had my treatment it is a complete life change.
It became apparent to me the other week. I went to the bike show here in Abbotsford. Other years I’ve gone but my buddies pushed me around in my wheelchair and i could only stay a couple hours. This year, no wheelchair and i walked for 3 hours. I was mighty sore and tired after that but the point is that I did it.
Thanks to the many that still follow this blog. I’m amazed. I’m still getting phone calls asking for info on the procedure and I’m loving the opportunity. If you have friends that have MS, or are caregivers of someone with MS, and they need to talk to someone about the procedure, I’ll be more than happy.
I’m hoping to give you a video of my 6 month anniversary. I said “hoping”..
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Mayda
i’ll be going to Cabo in a few weeks. I presently live in central Mexico. walking a thin line of hope and skepticism. i also have secondary progressive MS. on permanent disability since July 2006. diagnosed with Relapse Remitting in 1996. i’m so glad you found such good results.
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Brian Marson
Its great to hear you continue you do so well Gerry! Thanks for keeping us all so well informed and for inspiring so many others- Brian
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Gerry Peters
I have posted the pre-treatment video of Leona Kieneker. She is the Mom of my Son-in-Law (Chris). Her blog is at http://leonascaliforniaadventure.blogspot.com/2010/12/leonas-pre-treatment-video.html. Please check it out.
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Gerry Peters
Lovella is discussing. 
Loreena Weideman Buhl is discussing. 
Brian Marson, and 
Mayda are discussing. 
Lovella 8:23 pm on January 5, 2012 Permalink
Gerry, I couldn’t get into the website to read the article. It requires a log in.